Replies to Hello, I opted for a double mastectomy without reconstruction for my LCIS. I am starting to…

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Breast Cancer | Last Active: Dec 31, 2023 | Replies (98)

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@mayo101

Hello, I opted for a double mastectomy without reconstruction for my LCIS. I am starting to wonder whether I made the right decision due to not being able to catch future cancers at their earliest stage, which mammograms and MRIs would be able to allow for someone who didn’t go through mastectomy. You mentioned that if you were to have a cancer recurrence after the mastectomy, there is a good chance that it would be caught at a late stage. This is scary. Is there anyway to catch recurrence early for people with double mastectomy without reconstruction. Is routine ultrasound effective in catching anything brewing. Can we still do MRIs?

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Replies to "Hello, I opted for a double mastectomy without reconstruction for my LCIS. I am starting to..."

anjalima | @anjalima | Apr 1, 2023

I would definitely push for MRI. Since the MRI can examine my reconstructed boob side and it’s environment.. when there is no breast there… it should be the same for a non reconstructed environment; still chest wall and nodal system.

If your insurance won’t pay find out what it would cost you. In my area one could purchase this for $400.00. It was once thousands .

We need to self advocate for screenings regardless of our breast status. We are forever at risk.

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