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Diagnosed with sarcoma? Let's share
Sarcoma | Last Active: 1 hour ago | Replies (854)Comment receiving replies
I went to a general surgeon for a mass/bump on the back of my upper left shoulder. He believed it to be a harmless lipoma & it was elective to remove it. I chose to remove & he ordered an ultrasound. It was removed as outpatient. The pathology took extra time yo come back. The doctors front desk staff called telling me it was a benign lipoma sarcoma & not to Google it due to it would scare me. They said he got it all but I would need to return every 6 months for 2 years. I returned February 2023. He stopped in the room for a short time and took a quick look. I don’t understand the term benign lipoma sarcoma. I assume it means it’s not cancerous. But it’s a sarcoma? Any thoughts on the diagnosis would be appreciated. Thank you
Replies to "I went to a general surgeon for a mass/bump on the back of my upper left..."
@lb21ann, I not a doctor, but my understanding that a lipoma is a non cancerous (benign) lump that forms due to an overgrowth of fat cells. Lipomas are not cancer. Cancerous tumours of the fat cells are called liposarcomas.
It sounds like you might need to get clarification if you have a lipoma or lipsarcoma. Or a second opinion.
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Hi
Not sure if you’ve seen my earlier post but my Dad had a ‘benign’ skin tag removed from his back...13 months later has multiple lung metastasis and now diagnosed as sarcoma (UPS). He is currently undergoing Trabectadin chemo. Please make sure you ask for a CT scan to check your lungs (or PET scan even better). I don’t want to scare you but this is the exact misdiagnosis that my Dad had - told it was a benign atypical fibroxanthoma but it is UPS which comes with a much worse prognosis. They will argue it is very difficult to distinguish between the two but please go for follow up and I wish you all the very best