Hi, Im a 67 year old female suffering from extreme chronic pain that began at age 48. Almost 20 years in & my life being stollen by what was diagnosed as extremely rare case of fibro. Although have all symptoms of MS even lesions on my brain, optic neuritis, periphreal neuropathy, had emergency gallbladder surgery that I live in so much pain didnt realize I had it until I threw up bile went to er and they took tests & told me my gallbladder was gangrenous & in 24 hours I would have died from sepsis if I hadn't gone to er when I did. Surgeon could not understand how I did not know how ill I was due to fact this was over a long time period to e gangrenous as well as would have caused unbarable pain! He was perplexed literally! At 66 I had a heart attack, I have gastrointestinal issues, osteopenia, ulcers, colitis, hernia, just found out I have cataracts on n on ... I come from a family of seven children. I am the only one that has all these health issues out of the long list I do, the others do not have any !? Drs because of drug addicted kids as you all know have been threatened by the cdc & dea to stop kids from overdosing & with that drs stopped treating chronic pain med patients! Since then I have been suffering beyond imagination, I have no ability to live or semblance of normal life. At 48 I went from cant stop me to almost 20 years of If I want to shower I have to be afraid what pain my body will cause me for any & all physical movements. I am a prisoner in my own body. Ive seen a multitude of every specialist & beyond testing of every sort. I have grand babies now that I hardly see my illness & suffering has grown worse over time. I want to have a full genome sequencing , to check for rare diseases because my body is killing me organ by organ. I need help from Drs I know I cannot afford but I also believe those Drs would correctly diagnose me as well as most probably save my life so I can live whats left of it now at soon to be 68. I read about a rare disease that made my jaw drop because it was as if it was describing me & my ill health in every way. Hence wanting the full genome testing. Its called, Neurofibromitosis it has three types the name of the one I think may be my actual health issue is Schwannomattosis . When I read about it it was as if I was describing my issues 100%. Its a very rare disease of genetic defect cause & inheritance. It was a fluke thing that I even stumbled upon it. Anyone know of a reputable, Full genome sequencing lab in south Pa.?