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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 day ago | Replies (6021)

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@lorrainehackett

Have idiopathic peripheral Neuropathy for 15 years but lately progressing quickly. Any way to stop itm

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Replies to "Have idiopathic peripheral Neuropathy for 15 years but lately progressing quickly. Any way to stop itm"

Have PN unknown etiology, age 76, not diabetic, no injuries, accidents, diseases, no medications, although have tried gabapentin and Lyra and 10 mg steroid for 6/days. No remarkable change. Did take Pfizer covid vaccine, 2 shots and booster, mRNA carrier. Read yet unconfirmed study done at Stanford Medical Univ, connecting spike protein to attack on nerves to feet.
Condition has increased beginning to effect walking.

@lorrainehackett
@pnu
Both Gabapentin and Lyrica can take up to a month or so to be fully effective.

The only way I know to decrease progression is to repair what caused the Neuropathy.

Here is a link to The Foundation for Peripheral Neuropathy.

https://www.foundationforpn.org/

Jake

Hello @lorrainehackett, and welcome to Mayo Clinic Connect. I wanted to bring you into a welcome discussion for members who have neuropathy, so you will notice I have moved your post here:
- Living with Neuropathy - Welcome to the group: https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

I see that @jakedduck1 and @pnu have joined you already, so I hope you might be able to explore the information Jake sent for you!

Has your neurologist recommended any changes for you at this time?

Hi, welcome 💕🙏🏻
@lmill7 look up my past post fr some guidelines I follow n help.
Lots of autoimmune neuropathy that’s not diagnosed.
I was only 30 when mine stated but they thought it was just osteoarthritis in my spine.
Any arthritis or autoimmune starts from bad digestion n detox failure -nutrient deficiency and acidic body ph.
Then a cascade of things.
I never worked another day after mine started.
Directly after surgery. Couldn’t stand sheets against my skin. No clothing or shoes.😥
I was active duty n 35 by then. Medical just ignored my broken neck fusion, neuropathy n all my symptoms. They always blame th patient.
Can’t lay quiet or sleep.
Everything I’ve tried has helped. Can’t work but managed to raise our special needs son. At least son is doing very well💕🙏🏻🙂
I wish u luck n prayers. So many don’t listen.
Skin punch is now known as most definitive testing w/ spine tap to check inflammation markers.
💕🙏🏻🇺🇸

Thanks for the hug.
It means a lot knowing others understand. I look fit and normal but people don't see the pain.

Thanks