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Peripheral Neuropathy and PMR?

Polymyalgia Rheumatica (PMR) | Last Active: May 23 8:41pm | Replies (39)

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@redboat

The peripheral neuropathy in my feet has gotten worse and there is sometimes significant numbness around my ankles, and I have reduced control of my feet muscles.

It makes my walk awkward, but I can still get around.

Apparently PMR can itself often generate this sort of nerve damage.

I've asked to be referred to a neurologist.

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Replies to "The peripheral neuropathy in my feet has gotten worse and there is sometimes significant numbness around..."

@redboat, Sorry to hear PMR is causing problems with neuropathy and walking. I have both neuropathy (numbness only) and PMR which is now in remission. When my PMR was active and flaring bad, I had difficulty walking due to the pain but I'm not sure it was nerve damage.

I was not very proactive with my first occurrence of PMR and basically let it progress until I could no longer walk or drive. I remember having to crawl up the staircase since our bedroom is in the lower level of our house, and my wife drove me to my appointment with the rheumatologist at Mayo Rochester. Went in with a wheelchair, diagnosed with PMR in the morning, fluid drained from one of my knees, picked up prednisone RX at the Mayo Pharmacy, took 20 mg dose at 11am, had lunch, then went to a follow up appointment at 2:30 with the rheumatologist. The miracle was that I walked back to the car and was able to drive home.

Hoping you get some answers at your neurologist appointment and can give us an update.

Sorry to hear that the PMR is generating neuropathy symptoms. I hope once you can get the PMR under control the foot symptoms will dissipate. Somehow it all seems connected! My neuropathy was before the PMR, but maybe it is connected. Good luck.