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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 day ago | Replies (6021)

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@pinkton

Hi Chris, I am not a pill pusher either, so I do not take any medication for my neuropathy, although I have been prescribed several along my journey. I started having problems in 2011, when one day my legs and feet blew up like balloons. I think I should look into cannabis too, does it help for you ? I would be interested as to what brand you use and what doses. If that would be something you would care to share in a post. I’m trying different exercise to combat my balance issues. My feet are numb pretty much all of the time at this point, so if you have this issue could you tell me what you do.
This condition is very frustrating and I hate it, so any help or tricks would be very useful to me. I may not beat this, BUT I’m not giving up !!
Thank you for responding.........

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Replies to "Hi Chris, I am not a pill pusher either, so I do not take any medication..."

Good evening once again. I am right here and I will post in response to your requests and feedback. How's that?
Let's start with your feet. Yes, mine are numb most of the time. They have tingle tangles and a leather-like feel that is very tight. In order to be able to drive, my MFR therapists work on those feet twice a week. I do have to remember to lift them high enough, especially when going up and down stairs. Because my hands are also numb and I find it difficult to grip or grasp anything, I use a 1:3 CBD/THC balm at night time made by Papa and Barkley....at papaandbarkley.com. If you go there you will see two websites. One is for mailable CBD and so it is papaandbarkleycbd.com. However, I do want the entourage effect which means THC.

Oh....I almost forgot...those feet are also cold 90% of the time. The only crazy thing I do is have my toenails painted. On the big toe, I have a layer of rhinestones. I remember that my Mom always wanted her nails done so I set that up for her when she was in Assisted Living.

So....that is one way I use medical cannabis. The other way is determined by pain and the feeling of heaviness. For example, when a storm is coming, the Barometric Pressure (BP) will begin to fall. The effect on my SFN is overwhelming and I resort to a 1:1 CBD/THC tincture in an eye dropper. Once the BP begins to rise once again, I can go back to using a 2:1 tincture. I think I have been using Care by Design for years. Each dosage is consistently the same.....something that is reassuring. I can help you with dosage amounts when that time comes for you. Or you can visit a Cannabis dispensary and speak to their specially trained pharmaceutical staff.

For balance, I use a program from a company called "Medbridge". My PT selects the exercises and then we follow up with telehealth to make sure I am doing them correctly. I overdid it one time recently and my neuropathy raised its unruly head to let me know not to do that anymore.

So....how's that for starters? The only medication I take is for anxiety. Bisperone is a new one for me and I am doing a one-month trial. So far, I am impressed. Previously I took Duloxetine for several years. Anxiety leads to pain and pain leads to anxiety so this is an important element.

And one other tip and trick is to ask Jay, my life partner, to rub my feet for me. It might cost you a special dessert every once in a while but it is worth it.

I think that's enough for this evening. We are getting ready for the next storm so tomorrow will be a day of heaviness and pain. I will have a one-hour MFR session to help me get my body ready.

Please let me know your responses and wonderments........I am always here for you.

Chris