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Lost with no confirmation of NETs origin: Innumerable liver lesions
Neuroendocrine Tumors (NETs) | Last Active: Mar 31, 2023 | Replies (77)Comment receiving replies
@kim1965
That is great to hear about how well treatment has gone for your wife. My dad has just been diagnosed with a very similar case originating in pancreas and too many lesions on liver to count. I am curious what your wife's ki-67 score and grade was if you are willing to share?
Replies to "@kim1965 That is great to hear about how well treatment has gone for your wife. My..."
@emma0444
I have copied our pathology report below for you. This is after surgery, after 9 months chemo, and Lanreotide (still doing).
performed at WDL. The neuroendocrine tumor cells are positive for synaptophysin, chromogranin, and pancytokeratin AE1/AE3, A ki-67 index is approximately 1% and there is negligible mitotic activity, supporting the impression of WHO grade 1 disease.
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@emma044
I’m sorry to hear about your Dad’s diagnosis, but he can and will beat this. After 9mo the of Cap/Tem, Lanreotide, and surgery we are ready for the next stage in my wife beating this. Regarding your test you asked about, we just had a meeting just yesterday with our cancer team and I heard that number. All I remember it is low for now, but will be watched very closely every 3 months, along with CT’s, MRI’s going forward. More to follow, please let us know how we can share progress on your dad’s case, as we all are here to help each other beat NET.