I have had good improvement. I have taken Prolia for many years, since 2011. I had taken Fosamax and Aclasta before that, with no improvement. The improvement on Prolia was very good in the beginning, but now seems to just be holding. I have had to use different machines lately and of course that isn’t good and also makes it hard to be sure where things are.
In 2019, I had a BMD test that included TBS, and the TBS score was 1.277, which is pretty close to the 1.3 score that is considered the bottom of ‘normal’ as I understand it. I had one test after that on a different machine that did not have TBS software. I have moved so now need to get a test on another different machine in the next couple of months, so I’ll see how that goes.
I should mention I have not practised the diligent exercise routine I used to, and I had watched my diet better before as well. I am hoping to get back on track with both. That likely has played a role.
When I started, there was no indication that Prolia was such a problem to stop using. I would like to stop using it but continue to get warned I need to stay on. I am rather angry that this wasn’t known when I started. I will be interested to hear if they can come up with a decent plan to quit taking Prolia.
I have not had any other tests, such as bone turnover markers or used bioidentical hormones, and I am not aware of any echolight scans available near me. It sounds like these would be better testing tools!