← Return to Lost with no confirmation of NETs origin: Innumerable liver lesions

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@mbg20

Right now I’m being seen at Johns Hopkins. Because of a developing bowel obstruction the procedures have happened pretty rapidly. I’ve had a PET/Ct DOTENTATE Scan, a scan with iodine contrast at JH which provided a lot of information, and a second CT contrast scan last weekend because of fear that my small intestines were blocked. In sum I have a 5 cm mass in the mesentary, entangled small bowels, a suspected mass in the small intestine, uptake in some abdominal lymph glands, a right thyroid which show a lot of uptake and I’m awaiting a fine needle biopsy on it. So far my liver and pancreas seem free. Also some suspicious areas in T9 vertebrae and right collar bone. I started lanreotide under a John Hopkins doctor who works on NETs. I am also seeing a surgeon who works on NETs although he does other types of small bowel oncology. Because of concerns about obstruction i’m et for surgery tomorrow.

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Replies to "Right now I’m being seen at Johns Hopkins. Because of a developing bowel obstruction the procedures..."

Hello @mbg20 and thank you for being part of our community.

It sounds like you have had some helpful testing at JH. From your post, it sounds like you will be having surgery tomorrow. Is that correct? Will the surgery be directed to the mass in the mesentery?

I certainly wish you well and I hope that your surgery goes well. Have you been given an estimate on how long you will be hospitalized after your surgery?