Hi, everyone.

I just recently requested an appointment with Mayo Clinic and am waiting to hear if they will “offer” an appointment. I was diagnosed with antiphospholipid antibody syndrome in 2018 after a pulmonary embolism. I have been experiencing a variety of neurological symptoms over the last 10+ years, including constantly feeling imbalanced, dizziness, occasional vertigo, and chronic mixed headaches and migraines. I’ve been seeing specialists in my area and feel confident in their care with the blood clotting aspects. I’m on Coumadin and Plaquenil. For migraines, I’m also prescribed Emgality and Nurtec. I’ve seen ENTs and had a full work up several times, and they did not find any inner ear issues. However, some specialists have noted to me that they think it’s quite likely all these neurological symptoms are related to APS, but nobody I’ve seen knows how to treat these. This is what I would like to get treatment at Mayo for. For whatever it’s worth, my husband works at Mayo Clinic and our health insurance is the Mayo employee plan. He works remotely so we’ve never been seen at Mayo before.

Part of me is steeling myself to be rejected for the appointment request. My experience has unfortunately been when many doctors encounter a very confusing medical issue, they pass you along as a patient. Hoping for good news that I’m offered an appointment.

Has anyone here with APS experienced any other neurological symptoms, like imbalance, vertigo, or migraines?