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@mh10

Oh my gosh, someone with the exact thing as me! I was beginning to think I was going nuts because nobody had the exact same thing while stopping and standing. I try to explain this to the doctors and I really don’t think they’re taking me serious, but this is really disrupting my daily activities. I’m stuck on the couch for six weeks now. I cannot do anything. I tried going to the grocery store yesterday, and I had to cut it short and there was nobody in line in front of me, but I had such a hard time putting the groceries on the counter because I was standing still.
I do go for the tilt table test to see if this is POTS next week, so I guess I will find out then.
And also the same as you it sounds like - all my post Covid symptoms are things I’ve experienced every now and then for a short period of time for years now, but now I have it all at the same time and constant and severe. I tried to explain that to the doctors also but I really don’t think they listen. I need a good doctor that has experience and this, but I can’t seem to find one.

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Replies to "Oh my gosh, someone with the exact thing as me! I was beginning to think I..."

When I grocery shop I try to pace myself with the constant thought of the ordeal of checking out. I do self-checkout so that helps with not standing still, but when the register needs employee input I wonder if I can last just standing there. It’s so weird. I was at the Apple Store once. Something in the check out process took way longer than it should have and I looked for one of the few stools they have in the store, but I was out of luck. I ended up sitting on the floor and scooting under the display counter to get out of the walk aisle :-/
Pre Covid, with these mild, infrequent episodes of fatigue, low-grade fever and standing-lightheadedness, I thought maybe I had some sort of parasite similar to malaria (an intermittent and remittent fever caused by a protozoan parasite that invades the red blood cells), since I had done quite a bit of traveling in Africa, but I wasn’t able to find anything from my research. I am going to see a specialist in integrative medicine next month.
Another thing unique to me that I wonder if it’s contributing: I’ve always had a very low body temperature - like 96.8 degrees. So, if my temperature goes up to 97.9 degrees or higher, I feel feverish. (Post Covid my “normal” temperature is no longer quite so low. I don’t know if this is a new change like the elevated blood pressure, or if I’ve been constantly running a low-grade fever for over three years.)