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Collagenous Gastritis

Digestive Health | Last Active: Nov 19 2:11pm | Replies (460)

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@jdav

Hi everyone. I just found out this group exists. I was diagnosed with collagenous gastritis about 6ish years ago. It's drastically changed my life. I used to be a marathon runner-- the only thing I marathon now are episodes of real housewives. In my case I can't eat solid food without vomiting and a lot of liquids as well, which leaves me with very little energy and dehydrated a lot. I'm treated at Mayo and they are trying Entyvio infusions on me which are traditionally used for UC. But anyway, I'm wondering if anyone has had any other successful treatments? I've been on 3 different types of steroids and none have worked. Thanks, I hope everyone is having a great week!

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Replies to "Hi everyone. I just found out this group exists. I was diagnosed with collagenous gastritis about..."

I have microscopic colitis of the collagenous kind. So far I have tried only one medication for it can't remember what it was. It did not help. I have a new gastroenterologist now, so I am hoping he can help.

Hi, I just stumbled across this group in my search. My daughter has collagenous gastritis. Her doctor mentioned trying Entyvio. Did you start on infusions yet?