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@gratefulcat

Hi Everyone - I am almost three weeks post hysterectomy and doing well. My cancer was staged as 1A with a positive pelvic washing which requires follow-up radiation/brachytherapy. During the process, I learned I have a high probability of Lynch Syndrome and will continue with additional cancer screenings over the next few months.

Has anyone experienced brachytherapy for endometrial cancer? How did they feel? Any long-term side effects?

Thanks for your support.

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Replies to "Hi Everyone - I am almost three weeks post hysterectomy and doing well. My cancer was..."

@gratefulcat That's wonderful that you are three weeks post and you feel well. Also, that's very good news with Stage1a. It could be upsetting but actually helpful that you know you are at high risk for Lynch Syndrome and that you will be carefully monitored.

I had two sessions of brachytherapy when I had a recurrence of endometrial (adenocarcinoma) two years post hysterectomy. The team at Mayo Clinic helped me to feel as a relaxed as one can be in that situation and explained everything before it happened. So, no surprises which I appreciated. I did not have any pain with the procedure and felt comfortable enough to get up and walk away afterwards. I was fatigued overall from the external radiation with the two brachytherapy sessions but that was expected.

Long term side effects? It was explained to me that with external and internal radiation I needed to use a vaginal moisturizer on a regular basis and a vaginal dilator. The scar tissue from radiation can occlude the vagina and it's important to do this for one's long-term comfort and your future vaginal and pelvic exams. Hopefully, your radiation oncologist and/or the education nurse will explain all this to you.

When do you start the radiation and brachytherapy?

There is a discussion on radiation therapy here and you can read what others have shared as well as post your questions or your experiences:

What kind of radiation did you get for your gynecological cancer?

-- https://connect.mayoclinic.org/discussion/types-of-radiation-treatments-for-gynecological-cancers/

@gratefulcat
I had Endometriod Adenocarcinoma Stage 1A, Figo grade 2. I initially didn't require any treatments, but had a reoccurance 7 months after surgery and had 28 external beam radiation treatments and 3 high dose brachytherapy ones. For me the external beam ones were very quick and simple. I had plenty of gastrointestinal issues from them and the 3 brachytherapy ones were given after about a 10 day break. They were not painful but awkward and lasted much longer than the external beam ones. I believe mine were about 14 minutes each. Thankfully there were only 3 of them. I finished mine in December and just had my first followup with my Gynocological Oncologist and am currently awaiting the results of my tests. I also had positive pelvic washings but wasn't initially treated with radiation. I wish you well and would be happy to answer any questions you may have.

Yes, I had 6 I believe treatments of bracytherapy. No side effects at all. Good luck!!

Hello. May I ask why did you have a positive pelvic washing? I’m just curious as this wasn’t offered to me. Thanks

Hello. What’s a positive pelvic washing? Is it something they did test for during your surgery?