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Peripheral Neuropathy - Anyone else?
Neuropathy | Last Active: Nov 5 6:08pm | Replies (135)Comment receiving replies
Hi, I have written in before, and have serious peripheral neuropathy, and osteoarthritis in knees so have some troubles ...However, I have found that with AOR High Dose R Lipoic-acid, twice daily, with pregabalin 150 mg morning, noon and bedtime, no burning, tingling pain, etc, and feel absolutely no pain when laying down. My problem is the soles of my feet, as the previous writer said, terrible pain when walking, enough to make me stop every fifty or so steps, it is so bad it brings (almost) a tear to my eye...I cannot find out if it is PN or something else, plantar fascitis has been ruled out, so doctor just says, oh, must be your neuropathy.. Any suggestions, I have tried any number of socks, devices, creams, gels, etc, sandals with no socks best for me.
Replies to "Hi, I have written in before, and have serious peripheral neuropathy, and osteoarthritis in knees so..."
Soaking feet in Epsom salts in lukewarm water has worked for some people. My neurologist said they don't know why. If you haven't already done so, you might want to try it. So little is known about PN, that sometimes anecdotal information is best. Whatever you can pick up from others who can share their experiences.
If the pain is concentrated around the big toe, it could be gout, which means minimizing or avoiding purine producing foods. Montmorency cherry juice concentrate taken over time acts to reduce gout and arthritic symptoms. Again, the doctors don't have a definitive answer for why, other than they believe it's a chemical in plant.
Hope this helps.
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I understand when you say you have used a variety of creams and gels. Frustrating and expensive. I have a prescription pain cream. It is prepared by a compounding pharmacy. There are various “recipes” that your neurologist can request. It sounds like you need something to calm those nerves (Gabapentin, etc), numb the pain (lidocaine) and maybe reduce inflammation. I have a cream with three ingredients. $115 will last me six months or more. I only use it at night, on my hips, and occasionally during the day on a troublesome spot. If you haven’t tried that, you might. You can contact the pharmacy yourself, get the information on ingredients and price, then message your doctors office. They should be glad to help you.
It has to be a compounding pharmacy!