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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
Like you, I have had the PMR symptoms for more than 2 years but normal blood work - except at very beginning. I tell rheumatologist that I must be in the 20% of folks with PMR but normal inflammatory markers. He seems to think it’s more like 5%. But Rheumy Handbook seems to attest that if you rule everything out and Prednisone taper produces immediate response, it’s PMR. Of course we are all different. Hope this helps or engenders further dialogue.
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I am walking into my fourth year. Although my inflammatory indications are very light I still get stiffness and pain, but thank goodness not much. I started getting better when I took my diet seriously. I used to believe I could eat small amounts of the forbidden foods with no problem but as I wasn't progressing I started to take what I ate seriously. My diet is boring and bland but I was able to go down to 2 1/2 prednisone and it looks like I can reduce again soon. PMR isn't something to treat casually. It pays to take notice of everything the medical people tell you about diet and pull up the big persons panties and do it. There doesn't seem to be any easy way out of this.