← Return to Post-nephroureterectomy for UTUC - now abnormal bladder cells

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@colleenyoung

@lrwants2know, you have a lot of good questions for your upcoming consultation with the oncologist. Keep asking questions and ask again until the answer is clear to you. Do you usually bring someone to your appointments to help be another set of ears and note taker?

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Replies to "@lrwants2know, you have a lot of good questions for your upcoming consultation with the oncologist. Keep..."

No family available to come with me. Friends need to work. I audio tape visits that might be high-powered. Did that with the first urologist who did not know the implications of an invasive high grade UTUC biopsy report. He did not contact me or set up any follow up for 12 days after the biopsy report because he "saw hundreds of invasive high grade path reports and had a thousand patients". I had to put the European Urological Association's Guideline on UTUC in front of him and point out the sentences at the top of the introduction :"1 or 2 per 100,000 people are diagnosed annually with UTUC. Prognosis is poor" . I walked out on the meeting. He read the Guideline and very, very quickly set up a CT and Bone scan - 18 hours. CT Scan showed kidney totally destroyed. 3-1/2 months earlier it was only 1/2 destroyed.