1. < Neuroendocrine Tumors (NETs)

Anyone in the Orlando, Florida area?

Posted by isaiah5417nt @isaiah5417nt, Mar 26, 2023

Anyone in the Orlando, Florida area?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Mar 27, 2023

Hello @isaiah5417nt and welcome to Mayo Clinic Connect. After reading some of your posts, it appears that you have a NET in your stomach. Is this correct?

As a 20 year survivor of NETs, and having had three surgeries, I understand you wanting to connect with others who have a similar diagnosis. Have you had any surgery or other treatments for your NETs?

I look forward to hearing from you and connecting you with others. As you are comfortable doing so, will you post again with some more details?

REPLY
1 reply
isaiah5417nt | @isaiah5417nt | Mar 28, 2023
In reply to @hopeful33250 "Hello @isaiah5417nt and welcome to Mayo Clinic Connect. After reading some of your posts, it appears..." + (show)
@hopeful33250

Hello @isaiah5417nt and welcome to Mayo Clinic Connect. After reading some of your posts, it appears that you have a NET in your stomach. Is this correct?

As a 20 year survivor of NETs, and having had three surgeries, I understand you wanting to connect with others who have a similar diagnosis. Have you had any surgery or other treatments for your NETs?

I look forward to hearing from you and connecting you with others. As you are comfortable doing so, will you post again with some more details?

Jump to this post

Do you or have you had a stomach NET @hopeful33250.

REPLY
1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Mar 28, 2023
In reply to @isaiah5417nt "Do you or have you had a stomach NET @hopeful33250." + (show)
@isaiah5417nt

Do you or have you had a stomach NET @hopeful33250.

Jump to this post

Hello @isaiah5417nt

All three of my NETs were in the duodenal bulb. Two surgeries involved re-sectioning the duodenal bulb and the third surgery was done by an endoscopic procedure.

As you probably know, it is important to consult with a NETs specialist. At each of the Mayo Clinic campuses (Rochester, MN, Jacksonville, FL and Phoenix, AZ) there are NET specialists. If you would like a consultation, either in-person or virtually, here is a link that will give you appointment information, http://mayocl.in/1mtmR63.

If for any reason, you cannot be seen at a Mayo facility, here is another list of specialists worldwide,

--Find a Doctor
https://www.carcinoid.org/for-patients/treatment/find-a-doctor/
Has surgery been recommended?

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