It sounds like a lot of people are experiencing the same horrible exhaustion, but has anyone found it impossible to just stand in one spot for anytime? I find as the day goes on and gets harder . Example: you might be able to walk to point A to point B but if you stop along the way, you can’t. Or once you get to point B, you can’t stay standing? I just find this really weird, for example I may be able to walk to the kitchen okay but if I open the refrigerator, I can’t stand there to find what I’m looking for. I can’t stand to cook, wash dishes, etc.
I have tried to explain this to doctors and they don’t understand and I feel like they’re brushing it off and it’s frustrating.