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Why Dr has NOT prescribed me Rifampin for MAC/NTM?
MAC & Bronchiectasis | Last Active: Jun 22, 2023 | Replies (25)Comment receiving replies
I am about 4 1/2 months into treatment with the Big 3. MAI along with Aspergillis Niger were discovered 8/2022. Treatment started 11/22. My most recent sputum showed Aspergillis Fumigatus, still waiting on the AFB. My doctor doesn’t seem concerned about the Aspergillis, but I certainly am based on what I’ve read. Did Aspergillis ever show up for you previously, or just after you MAC treatment was complete?
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Aspergillosis fumagatos showed up on a biopsy 8/2/2022 after a “minimally” invasive robotic surgery. Unfortunately, my lungs were so fragile I had a pneumothorax after surgery and a chest hemorrhage after they took the tube out. I was at UMASS for two weeks. I was on Vfend - switched to Cresemba and now back on Vfend. Insurance won’t cover the Cresemba in 2023. They covered it in 2022. - so crazy. Not a fan of all this. They discovered MAC was gone prior to this (6/2022 with a bronchoscopy). Apparently it is not uncommon to get rid of one thing only to replace it with something else. The aspergillosis is apparently easier to treat than MAC. My diagnosis was invasive aspergillosis with pneumonia. The joy of it all.