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Peripheral Neuropathy - Anyone else?

Neuropathy | Last Active: Aug 9, 2023 | Replies (110)

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@julbpat

Are you under the care of a neurologist?
Do you have any past problems taking opioids? I have a prescription for Percocet 7.5 mg. I can take 1 1/2 pills per day. Since I switched to Tegretol for my neuropathy, and have been going to PT twice a week, I usually only take one pill per day. When my pain really flares up from activity, I have Prednisone 10 mg that I can start taking. I did that this morning, and will take it for 5-6 days until my hand pain ( from gardening) calms down.
All these solutions have come over time, working with a neurologist, pain doctor and rheumatologist. It’s like a part time job, keeping my pain and neuropathy symptoms under control.
It sounds like you need to call your doctor’s office today and tell them exactly what you just wrote. You need to be seen, re-evaluated, and get a new plan. Don’t feel bad about doing that. The doctor can’t help you if he doesn’t know, so keep working with them until you find the right solution. And show him this!
I have idiopathic length-dependent small fiber poly neuropathy, and (maybe) fibromyalgia. I am a retired nurse.

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Replies to "Are you under the care of a neurologist? Do you have any past problems taking opioids?..."

I went to a neurologist a while ago who passed me on to an 'assistant' for a nerve conduction test whose results were inconclusive as he neglected to perform a needle electromyography nor diagnosed any nerve damage. Utter waste of my time.
I've bought Soothe Socks as it said it helped neuropathy, but who knows?
Then back to my pain specialist who referred me to another pain specialist where I thought we'd discuss spinal cord stimulator device. He never mentioned it except physical therapy, increased dose of Pregabalin, blah, blah. Medication simply blitzes the body with painkillers; it can't treat each delicate nerve on an individual basis. You're right; if I can locate a 'bona fide' neurologist (London) hopefully he'll be more forthcoming with my urgent need for help. I WILL show him your comments. Thank you.