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Why Dr has NOT prescribed me Rifampin for MAC/NTM?

MAC & Bronchiectasis | Last Active: Jun 22, 2023 | Replies (25)
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@shirleye2

I started Arikayce right away because I have a lung cavity with MAC. I was quoted the same cost and pay nothing because of the Assistance program. Now on it for 12 months and have tested negative for the last 10. Also on the Big 3. So it appears to work.

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Replies to "I started Arikayce right away because I have a lung cavity with MAC. I was quoted..."
irene5 Irene Estes | @irene5 | Mar 27, 2023

Yay!!! So happy for you!

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frankie160 | @frankie160 | Jun 22, 2023

@shirleye2 and Sue, our Mentor and other members ,
Hi there and to others who have had experience with Arikayce. My Pulm Doc has recommended I start Arikayce and was approved for the Assistance program as well. I will be nebbing the Arikayce along with the Big 3 . But before starting, I'm doing research and checking in with our group members, who in my mind are most knowledgeable and very sharp about these matters. I've been very fortunate to find this group.
My main question right now is what side effects or adverse symptoms have you experienced (mild and/or strong) using Arikayce over time? And how have you and your doc been able to mitigate the side effects?
Thank you in advance for any thoughts at all.
Flo@frankie160

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