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Stage 4 Carcinoid tumor

Neuroendocrine Tumors (NETs) | Last Active: Mar 28, 2023 | Replies (30)
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@badi

Hi,

Sandostation Octreotide 30mg. He had the last one two weeks ago on a Friday. I was thinking we not going to see Monday the following week together. He had bad bad diareee and no strength or energy. He only got better about a week later. The diaree seems to be a ongoing problem.

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Replies to "Hi, Sandostation Octreotide 30mg. He had the last one two weeks ago on a Friday. I..."
sophiarose | @sophiarose | Mar 27, 2023

I am so sorry for you and your husband
I am on 10mg of Ocreotide and it takes me 10 to 12 days to feel normal after my injection only from my waist up
From my waist down my legs have continual bad pain and no strength
They do say after your body gets use to the drug it gets better
Maybe talk to the dr and see if they can start a little lower and up it gradually
Drink water until you float away and I can’t have any sugar at all
Good luck

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