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Why Dr has NOT prescribed me Rifampin for MAC/NTM?
MAC & Bronchiectasis | Last Active: Jun 22, 2023 | Replies (25)Comment receiving replies
It has been over a year without MAC. I was diagnosed in 2015/16 but had it I’m sure long before that. I started the Big 3 in July of 16. I was on again off again Finnegan till 2019/20 when I started Arikayce until 1/2022. I had two bronchs on 2022 - one in June and a robotic diagnostic one with biopsy in August. Both showed no more MAC after the “long wait” period. Unfortunately, I have a new gift (invasive aspergillosis) and have been quite sick with that since 8/2022 when I spent half of August in the hospital. I thought the good God had taught me enough patience with MAC as I used to be a type A personality - apparently He must want me to learn more. But the MAC is gone thanks to Arikayce . ( and of course lots of prayer) 🙂
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I am about 4 1/2 months into treatment with the Big 3. MAI along with Aspergillis Niger were discovered 8/2022. Treatment started 11/22. My most recent sputum showed Aspergillis Fumigatus, still waiting on the AFB. My doctor doesn’t seem concerned about the Aspergillis, but I certainly am based on what I’ve read. Did Aspergillis ever show up for you previously, or just after you MAC treatment was complete?
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That's great to be over a year without MAC! Sorry to hear there's something new though, and sure hope you are feeling better. I'm in month 6 of Azithromycin and Ethambutol, and Arikayce. Just hoping for a good outcome, and I'm always interested how others have done after treatment. God bless you, and we'll keep on praying!