I appreciate your updates as I have chosen not to have anymore treatments. I asked the surgeon how long I had and he said 6 to 8 months--that was Dec. 1st. He said chemo would only add about 4 months, but that there was always hope. He said to go out and do everything I wanted to do. The chemo made me so sick that it's not worth it to for 4 months. Today is 3/26/23 and I walked my dog and pulled dandelions and called a friend who has pancreatic cancer and had the Whipple nine years ago. There are now some nodules in his lungs.
I know that my time is coming. The symptoms I have are some anxiety for which I take lorazepam and a little discomfort on my right side--no pain. I also take a Creon with meals and pray a lot and hope that I will be a miracle.
Of interest is that five years ago I didn't feel good and went to ER and they did an ultrasound and MRI. All was okay, however, I recently looked at the results of those tests and it said that my pancreas had many cysts, probably benign! Well one wasn't! I don't know what could have been done and this is my fate.
Please keep updating. At least, I can see what is ahead for me. I was diagnosed on January 31, 2022. A week later I had a gallbladder attack and had my gallbladder removed. I had chemo and SRBT radiation in preparation for the Whipple. The PET scans and CT scans didn't show the carcinomatosis until the surgeon went in and saw it. I had robotic surgery and healed quickly. The doctor did not perform the Whipple, but took 6 inches of my intestine and created a bypass over my pancreas so I could digest food.
On most days I feel normal. I pray that God will give me more time.