← Return to How can I help my 15 year olds debilitating migraines from EDS?

Discussion
Comment receiving replies
@dmk

I would suggest try to find a support group of teens that have same diagnosis in addition to getting as educated as you can. Also you might find a support group of parents with children with same diagnosis for yourself

Jump to this post


Replies to "I would suggest try to find a support group of teens that have same diagnosis in..."

Thanks - I am a member of the facebook groups in Georgia for parents of children with EDS and POTS. We are attending the virtual EDS conference all day on 4/1/2023. We are attending the zoom support group for teen on 5/21/2023. I have not found anything sooner and have posted on the parent group about getting teens in Atlanta togeter but no response yet.

Anyone know about efficacy of cephay, antinausea watch, Ketamine or Prolotherapy? Acupuncture, Acupressure? Desperate here. Thanks!