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@kozl741

Hi! My bf had a similar diagnosis and surgery as well. He also had a negative result with the blood test. His doctors seem to be on the fence about any further treatment. I’m curious as to what benefits the radiation and chemo treatments provide. Did the doctors give you a choice to undergo further treatment just to be sure? Did they talk about percentages etc?

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Replies to "Hi! My bf had a similar diagnosis and surgery as well. He also had a negative..."

The original lymph node involvement had a small amount of extra capsular spread. Which I understand to mean the cancer cells escaped the lymph node and are in the neck. Also of the two bad nodes one was completely taken over by the tumor. I was originally told by my surgeon I would just need radiation to my neck and no chemo. The radiation oncologist told me to speak with the chemo oncologist. She went over percentages and it is only a small gain by doing chemo. I am not being treated at Mayo Clinic but sought a second opinion from then. Their oncologist said she would recommend the chemo as well. So I’m doing both as a curative treatment to mop up any microscopic cells that escaped the lymph nodes. I did not want to say no to chemo and then have a recurrence and wish I had done it. I have to say the side effects are worse with both but I’m going for a one shot deal to get this disease out of me. Hope this explanation helped.

I havent talked to my oncologist or radiation oncologist yet. That is on 4-10. But I will be weighing out all options. I hope I dont need another surgery. I hate what the anesthesia does to me its so embarrassing. Some people are happy and giddy. I am a hysterical basket case and cry very loudly.