I received 35 proton neck treatments for squamous cell on root of tongue. Just lucky it was caught early and needed, no chemo. Reading about the symptoms all of us who have under gone radiation, I am sorry but I believe we are not being properly cared for. Some of us will never get our taste back or never find relief from dry mouth. And heaven forbid if we should ever need a tooth extraction. It probably will never heal. Mayo Clinic offers a freezing option vs radiation for prostate cancer. And I can’t for the life of me figure why no one American institution offers this easy to get to no side effects for the tongue. There is one Mexican institution that offers it. I raised the question with an ENT and he said Well, it comes back to which I responded And whoever said it couldn’t come back with radiation? And I went on ‘So what? Even if I offers only a couple of more years without this discomfort , it’s worth it, just ask anyone of us. It seems to me freezing should be the first option offered all patients. It would be kess lucrative but a lot better than 7;weeks of radiation and the discomfort that follows…no better time to start.

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