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@vasolino

I received 35 proton neck treatments for squamous cell on root of tongue. Just lucky it was caught early and needed, no chemo. Reading about the symptoms all of us who have under gone radiation, I am sorry but I believe we are not being properly cared for. Some of us will never get our taste back or never find relief from dry mouth. And heaven forbid if we should ever need a tooth extraction. It probably will never heal. Mayo Clinic offers a freezing option vs radiation for prostate cancer. And I can’t for the life of me figure why no one American institution offers this easy to get to no side effects for the tongue. There is one Mexican institution that offers it. I raised the question with an ENT and he said Well, it comes back to which I responded And whoever said it couldn’t come back with radiation? And I went on ‘So what? Even if I offers only a couple of more years without this discomfort , it’s worth it, just ask anyone of us. It seems to me freezing should be the first option offered all patients. It would be kess lucrative but a lot better than 7;weeks of radiation and the discomfort that follows…no better time to start.

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Replies to "I received 35 proton neck treatments for squamous cell on root of tongue. Just lucky it..."

You may have a good argument here. Our current radiation treatment is basically a refined treatment from around one hundred years ago. It does however usually work. We need to find a better way I agree and someday we will. And we will look back and wonder what the heck was medicine thinking.
In the meantime…… Dry mouth. Twenty plus years I get up in the night to sip water. Can’t eat white rice and white meat poultry. Toast is better than bread but with butter not margarine. The point is we find ways to cope. There are many of us on this very feed who live with the new normal that cancer and its treatments have left us with. And for most of us it’s okay to live again.
Let me know how long it has been since your radiation. Let me/ us know specifically what you are trying to cope with and likely someone here has been through the same thing and can help.
And it is okay just to vent here too. We cannot carry you but we can talk with you, help you cope, and understand you.