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I hope for your sake that they take you off those antibiotics and find something else to treat you with. I have read some people refuse to take the antibiotics and go on Cipro and another drug I can't remember. I really hope that you can gain some weight back!!
So sorry you have to go through all this, and I wonder if you're having the side effects because of how long you've been on the drugs. I think that can have something to do with it. I'm new to taking them and that's not saying that in 8 months that I'm not going to have side effects to some degree, and I hope I don't but it could happen. I like reading comments because I want to be aware of what to look out for!
I'm really hoping that they figure out something different for you because if you go out to meds you'll probably gain some weight back and having some weight on your bones with Mac it's really important!!! Thanks for your post and I wish you all the best luck!
Angela
Replies to "I hope for your sake that they take you off those antibiotics and find something else..."
I also have thought that there may be a connection between how long I’ve been on the 3 meds and the side effects I am now experiencing. The severe dizziness just began about one year ago but I’ve been on the meds between 2-3 years. I hadn’t asked or even considered side effects that could be attributed to the meds. I was surprised when I did a search on all three and found side effects attributed to all three. Vision and hearing can be affected. I’ve noticed a little difference in my vision and my eye doctor today told me I now have 20/30 vision with corrective lens instead of 20/20 but he said that is still good. However I have noticed a huge change in my hearing.
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Thank you for your kind reply. I’m at a point of losing hope three years later after the latest CT results show the bacteria in my lungs is twice as bad as one year ago. Then the Guru for MAC got angry with me because I lost another 1 1/2 lb telling me YOU ARE GOING TO DIE if you continue to lose weight. That gives me something to look forward to. I am trying to gain. At least I haven’t lost any more weight - holding at 94.6 lb down from 125 last Fall. I stayed right at 125 lbs which I have pretty much weighed my entire life until two years after being diagnosed with MAC. Even my diagnosis was slow coming as I have only been experiencing severe fatigue. My primary care doctor ordered the sputum test which is actually what provided my diagnosis.