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Sphincter of Oddi Dysfunction: What helps you?

Digestive Health | Last Active: Jun 21, 2023 | Replies (34)

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@suerc

Does any one have this and how are they being treated ? My daughter has this and she cant eat anything. she has lost so much weight.

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Replies to "Does any one have this and how are they being treated ? My daughter has this..."

I would like to invite @lauriefrancis and @claudiabrende back to this topic to share their thoughts on sphincter of Oddi disease. I moved this discussion to the Digestive Health group as this dysfunction is related to digestive juices in the intestinal tract. @suerc, this must be hard to handle as a parent watching a child have a hard time with this diagnosis. If you don't mind me asking, what has been suggested by the provider who has diagnosed it?

Is she not eating because she can't? Or is she just so uncomfortable she don't?
They are guessing I have it? I swore it was stones or gall bladder, they say no.
It scared me, I had suddenly had a very sensitive area on my body which is now a whole area. IT IS NOT PAIN!!! For me it is a Severe Extreme Discomfort. I changed my diet immediately from fear. I eat peanuts, Rotisserie chicken, fruits and ( mostly blueberries, grapes,rasberries and pineapple vegetables such as canned mixed, fresh green beans, (baked potato) almost plain now) lots of beans kidney, black and chicken peas. No bread at all. Sometimes egg whites with spinach and tomato. Canned spinach.
That's my diet. I was 116 about 1and half months ago and I'm 102 now. I don't know what to do. I associate eating or walking ( movement) with my discomfort. If I touch it I will jump out of my pants...it's a No Don't touch it!! I'm very afraid I will die. I am left with no real answers and I'm scared. I don't know what to do? Even my clothes touching bothers me.
Again it does not hurt. Discomfort as if my organ is moving around best to descibe??describe???
Someone please ease my kind.
I don't believe in medication especially for a guess??? What di I do? Will I be okay???