Neuroendocrine Insulinoma: Is treatment different for this type?

Posted by bnjncrew @bnjncrew, Mar 23, 2023

It seem there are many different types of Neuroendocrine tumors. My husband has metastatic insulinoma. Is there anyone else who has this type of cancer? Is treatment different dependent on the type of Neuroendocrine tumor you have? Interested in others experiences with this type of cancer. It is very rare.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Colleen Young, Connect Director | @colleenyoung | Mar 25, 2023

@bnjncrew, I'd like to add my welcome. I augmented the title of your discussion to reflect the question you asked about treatment.

You may also be interested in reading this related discussion that @ahtaylor started back in 2017 when first diagnosed and asking about testing for insulinoma. The discussion continues to be active to this day with contributions from members like @marilyn2525 @jadedprincess @pontiac @kapple @skhollandmt @gaylejean and others
- NET - Insulinoma https://connect.mayoclinic.org/discussion/net-insulinoma/

And this discussion started by @links
- Pancreatic neuroendocrine insulinoma https://connect.mayoclinic.org/discussion/pancreatic-neuroendocrine-insulinoma

How is your husband tolerating Octreotide?

bnjncrew | @bnjncrew | Mar 25, 2023

In reply to @colleenyoung "@bnjncrew, I'd like to add my welcome. I augmented the title of your discussion to reflect..." + (show)

He Is fine with the Octreotide. He has been on it since June 2022. We have had a bit of a haul since last spring when first diagnosed. I am happy to say we have seen improvement from the chemo and he is now able to eat after losing 90+ lbs. (He had a good excess at the outset) . We are hopeful as his sugars have maintained normalcy since starting the chemo. I thank you for asking.