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How can I help my 15 year olds debilitating migraines from EDS?

Bones, Joints & Muscles | Last Active: Mar 28, 2023 | Replies (14)
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@colleenyoung

Welcome @candace317, I can imagine that you are very concerned for your daughter. I'm tagging fellow EDS members who have also talked about having migraines or headaches with EDS and/or also having POTS - members like @deb914 @cutlertc @mhjs123 @briisessions @julianned @hedstrong @guderianj @spoeps @anniemaggie @nlamont @katemschultz @lisafl @jthigpen @lifetimepain @wittmack @breick and others

While we wait for others to post about their experiences, you might wish to read these blog posts written my Mayo Clinic EDS experts:
- Headaches and EDS – Common and Painful https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/newsfeed-post/headaches-and-eds-common-and-painful/
- POTS Part II: Treatment https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/newsfeed-post/pots-part-ii-treatment/

Candace, is your daughter seeing an EDS specialist?

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Replies to "Welcome @candace317, I can imagine that you are very concerned for your daughter. I'm tagging fellow..."
candace317 | @candace317 | Mar 27, 2023

Thank you. She is seeing Dr. Mooney at the Pain Rehab Clinic at Childrens Healthcare Of Atlanta at the center for advanced pediatrics. I do not know if that person is an EDS specialist. I would love any Atlanta recommendations if you have them. Should I push insurance to get her to Mayo PRC in Rochester? I am pretty sure I can get it approved but don't know if treatment will vary?

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