Hello again, I remember having awful pain early on in my treatment. Had problems getting in and out of bed and even turning over. Most of the pain was in my bicep and pelvic girdle areas. I also developed gout without realizing it and then had a jolly old time limping to the toilet, almost falling in and then in agony trying to stand! I think for most of us the memory of that pain keeps us clinging onto each last mg of that Prednisone even though we hate it. I know I have developed a new understanding of people becoming addicted to pain killers.

Even though I have a happy disposition, there are times when I'm just fed up with it. Before this, I was a volunteer docent at our State Museum but have had to put it on hold because tours start early in the morning when I am not at my best. There are so many things I still want to do, but I'm doing them in moderation now. I'm even taking my grandchildren to Pompeii this summer and ignoring the fact that I may not be able to keep up with them. I'll just look out for a handy uber chariot!