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PMR and Methotrexate

Polymyalgia Rheumatica (PMR) | Last Active: 2 days ago | Replies (226)

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@1yoganurse

I’m pleased to hear you’re feeling well on the methotrexate. Some people cannot tolerate prednisone while for others, it’s a life saver. Fortunately we have other drugs that can give people their life back. PMR for me was the worst painful memories of my lifetime. I never want to suffer like that again. Be well.

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Replies to "I’m pleased to hear you’re feeling well on the methotrexate. Some people cannot tolerate prednisone while..."

Just for contrast about how one person can feel one way about something and another person can feel entirely different.

I felt like PMR was a "blessing" to me because of being previously diagnosed with other autoimmune conditions. The other conditions were "steroid responsive" so 60 mg of prednisone and a fast taper would be all I needed to achieve remission. I always had leftover prednisone from being treated for those other autoimmune conditions.

I was already a prednisone "junkie" before PMR was diagnosed because I put leftover prednisone to good use even though I didn't always have a doctor's blessing. I didn't hide anything because I admitted to self medicating.

When I told this to my rheumatologist, she was aghast and asked me why. I said that I didn't want to bother anyone! I was very happy that my rheumatologist would prescribe prednisone legitimately for PMR.

After taking prednisone for 10 years for PMR, I was having doubts about whether or not I still had PMR. I wanted off prednisone so badly but I couldn't taper off. I wrote a tactfully worded question to my rheumatologist about whether or not she only diagnosed PMR because I wanted prednisone.

I don't know how she felt but she seemed stern and reaffirmed that my diagnosis was PMR. She said she would not have prescribed prednisone if she didn't think I needed it.

I was just reviewing some of our correspondence that my rheumatolgist and I had in the past. I would refer to myself as a a prednisone junkie but an honest one. I just read what I wrote to my rhematologist 5 years ago. I wrote the following:

"I am wondering what you would recommend about the following: I am down to 7 mg prednisone in October and plan to decrease to 6 mg in November. Today, the problem is a sore neck, shoulders and extreme fatigue with ongoing lower back and hip pain. I am feeling progressively worse but not drastically worse, however, I doubt my wife would agree with that assessment. We will be going away and doing something fun during the last part of October and first part of November. I would like to feel as good as possible when we leave. I am sure that I will need some kind of anti-inflammatory because decreasing prednisone further isn't going to make me feel any better. We won't be leaving for a couple more weeks but I would like to feel as good as possible when we leave. In the past, I will confess to taking significantly higher doses of prednisone specifically for trips like this. Regardless of whether it was a good idea or not --- it worked."

I can't believe how stupid I was!