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Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Neuroendocrine Tumors (NETs) | Last Active: Mar 26, 2023 | Replies (66)
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@vinnie694

I’m being treated at Mayo Jax. Was diagnosed with NETs (Carcinoid Syndrome)December 2022, started in the small intestines and metastasized to the liver. Currently being treated with Lanreotide injections. Where is the tumor.

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Replies to "I’m being treated at Mayo Jax. Was diagnosed with NETs (Carcinoid Syndrome)December 2022, started in the..."
humble57 | @humble57 | Mar 25, 2023

I was recently diagnosed. I was told that my Duodenum and Pancreas Head has tumor and metastasized to the beginning lymph node

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ginnym3 | @ginnym3 | Mar 25, 2023

Interesting. I too am at Mayo JAX. I wonder why you are being treated for your NET Carcinoid syndrome that started in the small intestine and metastasized to the liver when my diagnosis is basically the same but I have more metastases (peritoneum and lymph nodes as well as small intestine and liver) and I'm on 'watch and wait.' I don't get it. How are you doing with the injections? There's so much to figure out and learn!

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