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DiscussionPolymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
Replies to "Hi Susan, I agree this "new normal" is no fun. I am operating at about 30%..."
When I got down to 2mg last fall I had more stiffness at the back of my thighs and pain in both wrists. I take Tylenol ES when needed. It is manageable and I didn’t want to increase the prednisone. About 6 wks ago I went down to 1.5 mg and no new issues so now I’m going to reduce to 1 mg. I have been on Prednisone for 2 yrs.
Hello sbhr, I was diagnosed with PMR 18 months ago and have tapered down to 2mg Prednisone. I have found that a very slow taper works for me, 1/2 mg at a time. I still have some stiffness in the mornings, but no pain. I'm hoping that my adrenals have become more responsible and are doing their job! My inflammation markers are all improving too. I was seeing a rheumatologist but my insurance company has just informed me that he is no longer in my network. Luckily, my GP is working with me on my tapering schedule and will order blood tests every three months to monitor my progress. I'm also fortunate that at 76 I have no underlying conditions to complicate things. I'm wondering what time of day you take your Prednisone. I have always taken it as early in the morning as possible and find that within a couple of hours the stiffness abates. I agree PMR isn't fun, but you could be dealing with much worse things. At least we have the possibility of remission. Good luck.