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ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome

Chronic Pain | Last Active: Apr 2 2:07pm | Replies (305)

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@finny4606

Thank you, groudan, I will check them out. I am trying to find a correct diagnosis, almost 4 years after my initial diagnosis of CRPS. Two physicians told me recently that I was misdiagnosed. So now I’d like to see a spine specialist to see what’s causing my terrible pain in both legs. Mayo Clinic didn’t accept me.

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Replies to "Thank you, groudan, I will check them out. I am trying to find a correct diagnosis,..."

I'm reply to pain in both legs. I was in hospital for 2 days for pain control. I was getting dilaudid prn and scheduled. The pain started coming gradually and then peaked then would subside for anywhere from 5-8 minutes then I'd feel it coming on again. I had ice packs on my legs. I cried so much the day I went to hospital, 7pm, that my eyes were swollen. I have had back issues for 20+years and if I stand too long in one place, my thighs get numb. I have woke during the night and either left or right thigh would be numb so I'd turn over. I can't lie on my back because that makes them numb. When I did wake during night, I was on my side. Just treating with pain meds and gabapentin right now. I do not want surgery. That pain in my legs was mostly in the thigh area and felt like it was deep inside my thigh. It's hard to explain and the ER doctor was going to send me home and I started crying and said omg I know you're not going to send me home with this pain. I was already taking hydrocodone every 4 hours and it was doing nothing and that's when he said we can admit you and try pain control if you want. It was terrible.