Thank you for your post. I am very sorry to hear about your husband. But he is lucky to have you as his advocate taking initiative to get information to cure him. I am actually a couple months ahead of your husband. I have Hypopharnyxgeal cancer stage 3a. Locally advanced. I also had Breast cancer 15 years ago. I can tell you breast cancer was so much easier to navigate than this. Mainly because there are many resources and awareness for BC. I finished my radiation 3 weeks ago. Cisplatain+35 rounds rads. No surgery. HPV negative (if you are + you are in luck). The treatment is like they say it is. Keep him active and do everything your doctor tells him to do. Keep his weight on with shakes and thick soups as long as possible. Also do the exercises. If they have not told you then ask or google them. 3 weeks post treatment my voice is coming back, I am eating & swallowing carefully and slowly. My radiated skin is peeling and I see new skin. No pain but I just have a cough that comes and goes. But that's fading too. My scans in May, so I too am nervous about my outcome. I am 57 years old, female, with kids in college.
I have many years planned ahead. I would love to meet someone in my situation, HPV negative, to tell me if it worked. For now I pray, exercise, eat healthy, and get hydration regularly. I finally having lunch with friends for the first time in months although I'll be whispering. I will post my scan feedback in May. Best of success. Feel free to reach out if you need anything. God Bless.