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Diagnosed with MAC but not being treated
MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (100)Comment receiving replies
I actually had a fall where I hit the side of my bed and felt like I had injured my rib cage. I went to the doctor and asked her to do a CT scan because I had thought that I had may be broken a rib. I was surprised when the CT scan came back with bronchiectasis and Micro Bacteria. I then saw several doctors who did many many blood tests and found nothing. They could not find a cause for any of it. I then reached out to Cedars Sinai in Los Angeles, and found a Doctor who did a scope into my lungs, and then came back with the results of MAI. I had no signs that would have related to me having this and of course I have no idea how I got it. I to have always been extremely healthy never having any issues and watched my diet . It was just by coincidence that it was found and the doctor said it was very good that I found it early. The soreness from my rib went away, but it was the reason I had the test done and found all of this.
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Nice to meet a kindred. I found out about my MAI in a very similar way last year. I had a syncope episode, out of the blue, where I hit myself hard in the back. The pain was so bad that I thought I cracked a rib! I went to see my PCP and she ordered an x-ray which showed bronchiectasis and a mycobacterial infection. Then the CT scan confirmed this. I felt really lucky to find out early. I felt it was my body asking for help, hence the syncope.
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KArissy , I’ve read your blog many times I wanted to reach out to you… It gave me hope.
Do you cough up phlegm? I was just diagnosed with Mac a couple months ago and a local infectious disease doctor wants to put me on the big three which I’m not doing. I have an appointment coming up at the NATIONAL JEWISH HEALTH in Denver Colorado to get completely tested… They are supposed to be the top place for Mac. Do you still not get any symptoms at all or do you get a cough with mucus at times and do you nebulize? Do you get tested consistently? Thks Bon