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Replies to "I was fine with the big 3, even at 40 months. It's the Amikacin IV that..."
When I googled side effects for all three meds one listed on all three was severe dizziness. The new lung specialist I was referred to denied it. My sight and hearing are both being affected so my concern over being on all three for almost 3 years has grown. I decided to try stopping them for two weeks and see if the dizziness disappears. It didn’t completely disappear but it has greatly improved. This same specialist was tremendous and offered hope during my first appointment; however, he was like a different person during my second. He was angry that I had lost another 1 1/2 lbs - as it appeared to be a loss for him. He wasn’t compassionate or comforting as he angrily told me I was going to die if I continued to lose weight. He has now doubled my Rifampin to two a day. My feeling at this point is when a doctor refuses to hear what you are saying about effects you, the patient, is experiencing it may be time to look for another doctor.
I’m not using an Amikacin IV - only a Philips Innospire Essence with 7% Saline. I passed out once as I got out of bed coming to when my face hit the decorative metal bed frame of my bed. I’ve learned to either sit down or if not possible to bend over until the dizziness subsides.