Hi
I was diagnosed last July with an insulinoma,tumor in my pancreas and liver lesions. I am on round 19 of 5-FU chemo..I was on everolimus,but had some reactions to the combo and they felt the 5-FU was more important not to miss...so for now the everolimus is on hold(but said probably add down the line. I too have neuropathy,trying to deal with it as best as possible.
I wear a Dexcom system to monitor my sugars. I have them moderately under control.
They tend to go haywire sometimes when I get disconnected from the infusion.
They want to continue the chemo until such time as it plateaus. Last scan showed shrinkage so on to the next.Have not started OCTREOTIDE shots as of yet. The sugars are the hardest as my taste is terrible for most foods and I am not particularly hungry...the sugar monitoring demands eating to regulate them!
My best to all of you.