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Neuroendocrine Insulinoma: Is treatment different for this type?

Neuroendocrine Tumors (NETs) | Last Active: Mar 25, 2023 | Replies (12)
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@pontiac

Whipple procedure was performed August 2022. Only explanation I've received is my pancreas just dumps excess insulin. My blood sugar is dangerously unstable, have multiple times of losing consciousness. Constant glucose monitor that I've been given helps monitor it. Laying down flat to sleep is impossible, my blood sugar will drop 30 40 points in 30 minutes to hour. I have to eat to constantly to keep my blood sugar in the 70s and 80s. I'm frustrated beyond belief. I've gained lots of weight, trying to keep blood sugar stable.

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Replies to "Whipple procedure was performed August 2022. Only explanation I've received is my pancreas just dumps excess..."
Teresa, Volunteer Mentor | @hopeful33250 | Mar 24, 2023

@pontiac,

I would like to invite @ahtaylor to this discussion as she has also had a lot of problems with blood sugar related to NET insulinoma.

Are you currently seeing a NET specialist? Mayo Clinic has great NET specialists in all three of their locations (MN, AZ and FL). If you are interested in getting a second opinion, here is the link where you can check on appointment availability, http://mayocl.in/1mtmR63.

If you are not able to be seen at Mayo (for any reason), here is a list of other specialists worldwide,
--Find a Doctor
https://www.carcinoid.org/for-patients/treatment/find-a-doctor/
I look forward to hearing from you again. Will you post again and let me know how you are doing?

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