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Terrified of what's coming

Caregivers: Dementia | Last Active: Apr 29, 2023 | Replies (25)

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@IndianaScott

Hello, @mariana739 My name is Scott and I was my wife's caregiver during her 14+ year journey. I know how frightening those early days can be!

I'm only a caregiver and not any kind of medical professional, so I just offer what I learned from our experiences.

There were meds that seem to extend plateaus with dementia patients. This can help prolong their abilities at a certain point, which can be helpful. As to side effects, I only say to remember they list all the possible side effects that anyone could have, not that are inevitable. My wife's point of view was to try the med and then see if there were any ill effects and if I witnessed any benefits. Of her various meds, I can recall only one with a side effect that made her quit, which was nausea.

I'm glad you found the support of Mayo Connect! The sharing and support I got here was a huge help to me, also a sole caregiver.

Strength, Courage, & Peace

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Replies to "Hello, @mariana739 My name is Scott and I was my wife's caregiver during her 14+ year..."

Thanks a lot for your understanding Scott.
Your wife was very lucky to have you during that long and hard journey.
I just pray that I can find that kind of compassion within me when the time comes.
God bless you💕