Hi,
I am new to this site and new to PMR, only diagnosed about seven weeks ago. While I got almost immediate relief from some cortisone shots in my hips and starting 15 mg. prednisone daily, I am now adjusting to what I call my "new normal".
Normal is not fun. Nor is is anything like what I thought treatment would bring. I have pain all the time, though nowhere as debilitating as it was - I was hardly able to walk and was crawling up/down stairs. Now I can move around, go to work, go for short walks (again, not the 3-4 mile walks I was taking!) and wondering what the future holds.
I am being treated by my PCP who is already talking about reducing my prednisone and I think I need a higher dose!!
The wait time to see a rheumatologist is months, even here in central NC, home to two major medical centers, so I must wait. Am taking tumeric, eating an anti-inflamatory diet, and looking for some encouragement that things will get better.
Any and all thoughts and suggestions will be appreciated. Thanks!
Susan
Hi Susan,
I agree this "new normal" is no fun. I am operating at about 30% of what I was 6-7 weeks ago. I just happened to see a rheumatologist last summer for my sjogrens, so I was able to get an appointment when this PMR beast hit me.
When I get close to the time to take my daily prednisone, I am hurting. I manage to get through the day (for the most part) but I, too, have pain all the time.
I'm curious to know from those who have tapered to below 5mg if they still experience pain and the limitations associated with this.