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Neuroendocrine Insulinoma: Is treatment different for this type?

Neuroendocrine Tumors (NETs) | Last Active: Mar 25, 2023 | Replies (12)
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@pontiac

I've been dealing with it. I had multiple tumors on my pancreas, with lesions on my liver also. Causes hypoglycemic episodes constantly. Had Whipple procedure done, it stopped hypoglycemic issues for about 4 months. Unfortunately lesions grew, things have returned to battling hypoglycemic bouts everyday. Currently am doing chemo, with capecitabine and telmodar

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Replies to "I've been dealing with it. I had multiple tumors on my pancreas, with lesions on my..."
Teresa, Volunteer Mentor | @hopeful33250 | Mar 24, 2023

Hello @pontiac, I would like to welcome you to the NETs discussion on Mayo Clinic Connect. I appreciate you sharing your experiences with @bnjncrew.

I look forward to getting to know you better. If you are comfortable sharing more, how long ago was your Whipple procedure done; does your medical team have any answers for the hypoglycemic bouts you are having; and is your oncologist a NET specialist?

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