Thank u for ur response. Yes the primary care was giving him a hard time getting a referral but by some miracle he was able to get in with another Dr at the office who actually listened to him and gave him a referral to the neurologist. Our older son has ms and this son thinks he may have it or something else like u were saying. It could be a number of things. I have had back and neck problems for years and just had to do an updated mri and they found a mass in my spine so I am trying to find out if it is cancer or not and the drs. Just don't seem to take things to seriously especially when cancer runs In our family. It took them a year going to numerous drs. With every one telling me they didn't know what was wrong with my oldest son to finally get a diagnosis. I finally took him to a specialty hospital and he was almost at the point where he could no longer walk. He was also having trouble using his hands. The er dr there sent him to a specialist with the hospital and within 5 min of her being in the room withhim she diagnosis him and sent him directly to the hospital where we stayed a week for treatment. Head transferred from there are spend another week in another hospital doing physical therapy and now walks normal. He still has issues but so much better. Always scares me when he as a flare up though. Sorry for the long response. I just want everyone to know don't give up on finding what is wrong somewhere out there someone has ananswer u just have to get to theright person.