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Spinal epidural lipomatosis

Spine Health | Last Active: Mar 25, 2023 | Replies (10)

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@jenniferhunter

@bernice1964 Hello and welcome to Connect. I am a spine surgrey patient and had a cervical fusion. Seeing a spine specialist was a good decision for these symptoms that you have. Sometimes symptoms that can be recognized as lumbar spine issues may also come from pelvic dysfunction called Lumbar plexus compression syndrome that can produce similar symptoms if there is no physical spine condition causing them. Did your doctor order imaging studies to look for structural spine problems?

Here is a link that can explain these kinds of problems which was written for physical therapists.
https://mskneurology.com/identify-treat-lumbar-plexus-compression-syndrome-lpcs/
May I ask what the diagnosis was? Did the doctor advise anything other than weight loss such as physical therapy? Will you be following up from time to time on your progress?

Jennifer

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Replies to "@bernice1964 Hello and welcome to Connect. I am a spine surgrey patient and had a cervical..."

Yes, I had a MRI. When I went in for consult after MRI, he told me it was the worst spinal epidural lipomatosis he had seen. Not sure how many he has seen prior to me. He was very concentrated on my weight, wanted me to see endocrinologist for hormone testing. When I contacted endocrinologist, they would not see me for what he had ordered. I’m not opposed to losing weight, I realize this will help many things. I’m just in so much pain with standing, walking and sitting. I’m most comfortable lying on my left side to relieve pressure. After spine dr consulted with my MD, he agreed to do a steroid shot in my back, reluctantly. His office told me the shot could make my condition worse. I’m unsure of what to do!