My issues are similar, but began suddenly with a collapse and knees and hips would not hold me upright. My initial problems were both legs were spasming or cramping any time I laid down (RLS times 20!) very loose joints, right side of my body is numb from the toes to armpit, left hand was numb, left hand and leg were slightly not as strong as the right side. I can move everything, thank heavens!
I was in the hospital 10 days, full body MRI, repeat (more slices) brain and cervical spine MRI. I received 5 infusions of steroid and 5 IVIG infusions; receiving meds gabapentin, robaxin, tramadol, 6 mg tizanidine, benadryl (for sleep), 10 mg melatonin, 1000 mg NAC. All meds were not given at the same time, but they finally got the meds correct, and I actually slept a couple nights before going to rehab for 5 weeks. Then that medication mess started all over again, till finally I was taking 600 mg gabapentin, 2/day, and then 1200 mg gabapentin at bedtime, along with flexeril, tylenol PM (or benadryl), and doxylamine. Finally got the leg spasms to stop long enough to sleep 6 hours! Yay! My first out-of-hospital neurologist had all the records and said it's transverse myelitis (both sides of the body affected because the myelin around the spinal cord suffered an "attack" of some sort). When I left the hospital the only improvement is that the left hand is not as numb.
I was referred to a neurology specialty group at University of Texas, San Antonio, for a second opinion, met with a doctor who talked about MS, "cousins" of MS like MOG, NOSD. Her diagnosis was transverse myelopathy (both sides of the body, but now there is some condition of the myelin causing a problem, like the immune system mistakenly attacking the myelin and doing some damage resulting in the list of problems I mentioned. She has ordered a brain and cervical spine MRI to be done in May, with an office visit in June. She said she wants to see if there is any difference in the scans, and added that we need to wait 3 months to do them. The next visit is in June, and maybe she'll have an actual diagnosis.
So now I'm taking 600 mg gabapentin 2/day, 1200 mg gabapentin at bedtime, flexeril at bedtime, 1 Tylenol, 1 Benadryl, 2 doxylamine, 10 mg melatonin, all so I can sleep more than 4 hours. If I wake up, I can usually go back to sleep for a couple more hours. I'm using a walker any time I'm upright, since the joints still won't hold me up, just to keep me from collapsing or falling. I'm going to PT 3/week, pool PT 2/week, pool aerobics. Strengthening the legs and arms is the point to all that, and my legs feel better.
I wish you and all these other people suffering these issues better health in the future!