← Return to Fibrillary glomerulonephritis

Discussion

Fibrillary glomerulonephritis

Kidney & Bladder | Last Active: Aug 21, 2023 | Replies (76)

Comment receiving replies
@lianelady

I have had Fibrillary Glomerulonephritis for 6 years now. I am stable for now. 8 rounds of Rituxan since biopsy diagnosis. It helped. I was wondering if anyone else here suffers from fatigue, joint pain, stiff joints, elevated sed rate, elevated CRP and a feeling that my body is fighting something and a overall unwell feeling. My Nephrologist said she believes that Fibgn is also associated with some type of immune dysfuction. I have tested negative for most rheumatological diseases. But I have symptoms of something. The research of this disease shows once proteins start depositing in kidneys, the immune system starts attacking. My doctors and I have noticed that while i am on immune suppressent meds, my symptoms get better and kidneys are stable. While i am off immune suppressents, body feels terrible and amount of protein in urine rises. I wish there was more information about this disease.

Jump to this post


Replies to "I have had Fibrillary Glomerulonephritis for 6 years now. I am stable for now. 8 rounds..."

Have you seen a hemotologist my Kidney Dr. is sending me to one