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Diagnosed with MAC but not being treated

MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (100)

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@healthybon

Kwi..when you nebulize with saline, do you notice some days it’s clear, sometimes there are little plugs……?
Can you share what your daily regimen is with us in terms of how many times you nebulize daily, what and for how long your exercising is daily……etc
How, if at all, has the Mac impacted your daily life ? How often do you get your sputum checked? Thks Bon

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Replies to "Kwi..when you nebulize with saline, do you notice some days it’s clear, sometimes there are little..."

Healthybon- my airway clearance routine is similar to many on this site. Twice a day with 7% saline, Aerobika and vest. I also use the autogenic drainage app. I received the vest a year after diagnosis. After starting airway clearance, I only had a tiny amount of clear or white sputum and sometimes it might have a BB size yellow wad. After about seven months I started having more sputum (about a tablespoon) and it’s grayish yellow so I don’t notice the plugs so much. My MAC was diagnosed by a bronchoscopy and after I started producing sputum my pulmonologist didn’t mention testing it. She pushed the antibiotic treatment from the get go, but I refused because I wasn’t having any symptoms. Now I see a different pulmonologist and he says test sputum every 3 months and do a yearly scan.